Will endometriosis kill you?

I decided to write about this for two reasons, one being a recent endometriosis death, and the second one because it almost took my wife’s life too! So, the question is – will endometriosis kill you?

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Endometriosis is a painful condition affecting people’s quality of life, but it’s still not considered a fatal disease even though endometriosis’s death rate is 0.1 per 100,000. 1 per million seems rare, however, complications of endometriosis and suicidal thoughts are common.

Endometriosis occurs when endometrium-like tissue grows outside your uterus in areas like the ovaries, abdomen, and bowel, but it can also grow beyond that in other places in the body such as the diaphragm. Endometriosis is an insidious painful condition.

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Will endometriosis kill you?

I gave you a quick answer but in order to fully understand if endometriosis can really kill you, we need to know a little bit more details. It all depends on your circumstances, so firstly, you need to ask yourself these questions:

• What type of endometriosis do I have?
• What stage of endometriosis do I have?

Depending on the type and stage of endometriosis you have, it will give you a clearer picture of the level of your condition, however, knowing that endometriosis can spread, you will find yourself asking the following questions:

• Where can endometriosis spread in the body?
• Can endometriosis kill you if untreated?
• Can endometriosis cause cancer?

You should also take into account your personal circumstances because every person is an individual and will have a different experience from yours.

Endometriosis, like many chronic conditions, can change the affected person’s life. Amongst many aspects, it has a huge impact on mental health, often causing anxiety and depression. If you are in such a position, another question arises:

• Can endometriosis make you suicidal?

So, to help you find the answer “will endometriosis kill you”, I am going to respond one by one to all the questions below:

• What type of endometriosis do I have?
• What stage of endometriosis do I have?
• Where can endometriosis spread in the body?
• Can endometriosis kill you if untreated?
• Can endometriosis cause cancer?
• Can endometriosis make you suicidal?

What type of endometriosis do I have?

Stage 1 – minimal – where there are a few small wounds or lesions, which may be found on your organs, the tissue lining your pelvis, or even your abdomen, but there’s little to no scar tissue.

Stage 2 – mild – where there are more implants than in the first stage. Additionally. they are deeper and may create some scar tissue.

Stage 3 – moderate – this stage has many deep implants. You may additionally have small cysts on either – one or two ovaries, and even thick scars called “adhesions”.

Stage 4 – severe – as the name suggests, is the most severe stage which is widespread. You have many deep and thick adhesions and there will also be large cysts on one or both ovaries.

What stage of endometriosis do I have?

Superficial peritoneal endometriosis is the first type, in which a thin membrane, called “peritoneum”, lines your abdomen and pelvis, and covers most of your organs in these cavities. In this type, the endometrial tissue attaches to the peritoneum, which is the least severe form of endometriosis.

Endometriomas. These are dark color cysts, fluid-filled, also called “chocolate cysts” because of the way they look. They vary in size and may appear in different parts of your pelvis or/and abdomen. However, they are most common in the ovaries.

Deep infiltrating endometriosis (DIE). The endometrial tissue in this type invades your organs, either, within or outside your pelvic cavity. This may include your ovaries, rectum, bladder, and even your bowel.

Abdominal wall endometriosis. Lastly, type four (adenomyosis) is a type of endometriosis where the endometrial tissue grows on the abdominal wall. The cells may even attach to a surgical incision, like one from a C-section.

If you want to learn more about endometriosis, I wrote an “Endo-Tool, Endometriosis for Men” e-Book.

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The first chapter alone contains all the comprehensive medical knowledge about endometriosis, including:

• What is endometriosis?
• What are the symptoms?
• What causes endometriosis?
• What does endometriosis look like?
• What are the stages?
• What are the types?
• What is adenomyosis and how is it related to endometriosis?
• Why do some women develop severe endo and others don’t?
• Does endometriosis cause infertility?
• How is endometriosis diagnosed?
• Do types and stages affect the treatment?
• Recurrence of endometriosis after excision surgery.

Where can endometriosis spread in the body?

In order to answer “will endometriosis kill you”, you need to know where can endometriosis spread in the body. Let’s dive right in – where can endometriosis spread in the body?

Yes, it can, and yes, it does!

As you already know, endometriosis grows, it’s a progressive disease, it spreads just like cancer (but on that later). My wife suffers from stage IV deep infiltrating endometriosis. It reached her bladder and the bowel. But it can spread anywhere else.

According to this source, “endometriosis has been found in every single organ in the body. The symptoms range from abdominal pain to brain fog and fatigue, to chest pain and shortness of breath, to nerve pain and pain with urinating”.

It can be very serious!

Most people with this condition will have it in their pelvis, but researchers have found that around 12% have it outside the pelvis. Endometriosis complications may include:

• Fertility problems, ectopic pregnancy.
• Organs obstructions or/and damage.
• Bladder and bowel problems.
• Adhesions and ovarian cysts.
• Surgery complications and infections.
• Loss of blood, severe anemia.

Additionally, there are other complications such as the development of other chronic conditions, like (my wife’s case) fibromyalgia.

Diaphragmatic endometriosis can be also found, but it’s common not to feel any symptoms at all with this kind of endometriosis. Its symptoms can include pain in your:

• Chest.
• Upper abdomen.
• Right abdomen side.
• Shoulder.
• Lower ribs.
• Pain when you breathe.
• Nausea or vomiting.

What is rarely spoken of is endometriosis that spreads to the brain. Cerebral endometriosis is the growth of endometrial tissue in the brain. Cerebral endometriosis is extremely rare, where the endometrial cells are found in the back part of the brain known as the cerebellum.

Can endometriosis kill you if untreated?

Yes, endometriosis can kill you if untreated. As you already know, endometriosis creates endometrial cells that resemble the uterus lining, causing them to grow in atypical places in the body instead of inside the uterus.

Endometriosis can result in many complications, spreading beyond the pelvic region, however, even the simplest stage and type of endometriosis could be fatal if left untreated. With time, it will grow, can perforate other organs, and cause infections. It can also cause cancer.

Can endometriosis cause cancer?

Yes, endometriosis can cause cancer. Even though rare types of ovarian cancer, like clear cell ovarian cancer and endometrioid ovarian cancer, are more common in women with endometriosis, it shows they exist.

Endometriosis can cause cancer, and there is a higher risk of it than amongst women without endo, but these cancer types have a risk lower than 1%.

Can endometriosis make you suicidal?

Yes. I personally experienced my wife’s struggles with countless suicidal thoughts. She still has them these days, especially because she just discovered another endometrioma on her cyst, and her endo is coming back.

Every morning my wife wakes up, she realizes the positions she’s in. It gives her anxiety over the unknown future, depression over the loss of her beautiful life.

Depression on its own can lead to dark thoughts, but when you suffer from endometriosis, can’t have kids, lose the job you used to be passionate about, your social life, friends, and often feel misunderstood, it makes you feel like a burden to everyone.

My wife tried to commit suicide on multiple occasions, she also asked me a few times to divorce her for my sake, that’s how this illness made her feel. So, can endometriosis make you suicidal?

Yes.

But you can help your partner prevent going downhill by helping her in a holistic way. A fantastic book I can recommend is “Healing from the Inside Out” which you can preview and access below…

This book dives deep into the whole topic of using a vast range of safe natural therapies and nutrition to help manage endometriosis.

Will endometriosis kill you? Final word!

Will endometriosis kill you? If untreated, yes. If apart from physical symptoms endometriosis impact your psychological, emotional, mental, financial, social, economic, and work-life, you may become depressed and experience suicidal thoughts.

But as long as you reach out for help, are surrounded by friends and people who love you, you will be able to overcome any struggles that endometriosis imposes on you.

A loving partner can be the best person to give you that support. If you haven’t found one yet, don’t lose hope, reach out to people for help.